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 What age did your child/yourself get diagnosed?

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Bambi
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PostSubject: What age did your child/yourself get diagnosed?   24/4/2007, 7:40 am

T was 6.5 yrs when i finally got him assessed (properly) and diagnosed, i was raising concerns seriously with medical professionals when he was 2 yrs of age and i knew myself something was amiss honestly before he was 1 yr old.

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mum2charlotte

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PostSubject: Re: What age did your child/yourself get diagnosed?   24/4/2007, 9:34 am

Charlotte got her dx 1 month before her 5th birthday.

I got called into school about her behaviour in the September (weeing on the classroom floor, running away, being disruptive etc etc) and I have to admit I broke down (I hate myself for allowing them to catch me off guard). She was assessed in October and then dx came in November.

I was so adjusted to her behaviour that I thought it must be my fault. Bad mummy skills or something. I simply thought that she was a wilful child and I just should be firmer with her.

Having said that, I was beginning to be suspicious of some of her behaviour, the strange giggling for no reason, the obsession with certain things, the fact that the "naughty step" simply didn't work. I could go on, but you know the story....it's your story too!

Had school not been so quick off the mark I don't know what would have happened. She displays behaviour there that doesn't appear at home and vice versa.

Charlotte was a perfect child until she was 3. No teething trouble, potty/toilet training was a doddle, you name it it was plain sailing! This just reinforced my feelings that it was my fault as I put her 'different' behaviour down to the "terrible twos" coming a bit late....

I'm lucky, I think, in that the help I have had (although I get no support at home) has been swift and useful. I just hope it continues.

If I could make one thing happen for C it would be that ordinary folk are more aware of conditions like PDA. I would be happy if just 1 person came to me and said "thank you for making me aware and more tolerant".
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misty

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PostSubject: Re: What age did your child/yourself get diagnosed?   24/4/2007, 1:37 pm

dd was 3 and half, I had raised concerns when she was 2 but wasnt taken seriously Mad I finally managed to get her an appointment to see a speech therapist just after she turned 3 and she referred us onto the assesment team.
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Bambi
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PostSubject: Re: What age did your child/yourself get diagnosed?   26/4/2007, 10:02 am

It seems to me (in my research and meeting other parents) that postcode lottery plays a BIG part and so does the fact that HFA is harder to get dx, due to it not being as obvious as it is in severely autistic children.

My worry with this is that too many kids do slip through tthe net and too many LAs fob parents off too easy and can become even more ignorant knowing this Sad

The way i see it is that its average for HFA to be dx around the age of 10 and severly As around the age of 2-3, all the years lost with a dx the HFA so late in life is damaging and so very sad.

T wouldnt of been assessed now if i hadnt of been fighting for almost 5 yrs and how many kids are now in their late teens and getting help seems inpossible or it may not even help them now as it is too late.

Early intervention is the key, as is understanding or the child can end up without any sort of quality of life Sad

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Dillydorax



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PostSubject: Re: What age did your child/yourself get diagnosed?   26/4/2007, 12:44 pm

My two boy's have Autism. The elderst 10yrs was dx between 2-3yrs. The little one was very young as he is severly affected with Autism. But regards to the late dx with HFA in children, my thought's regarding this is that the Medical Proffessional's who assess our children and are responsible for the dx, just want to be 110% sure that they get the right dx for our children. And not mis-diagnose.
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Bambi
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PostSubject: Re: What age did your child/yourself get diagnosed?   26/4/2007, 1:10 pm

When a child has very little language and violent behaviour from the young age of 1 and special needs registered with an IEP from age of 3, u would expect a child to be assessed or looked at properly but they rather blame the parent and 'wait & see'.

T showed classic ASD behaviour from a very young age (i didnt know this until he was 4 yrs old) along with not wanting affection from his own parents from being a baby in arms and still to this day (has to be on his terms). This is very common with many parents/carers and this is what is worrying for many of us because all them years lost and being blamed is damaging the well-being of the child.

This type of ignorance should of gone when Kanner discovered Autism in 1944, when the days of mothers being called 're-fridgerator mothers' stopped being used as the cause of Autism.

Lorna Wing quotes in one of her books 'the undiagnosed child can later in life suffer with psychiatric problems' how very true that is. T is now on a medication that isnt registered for a child of his age (anti-psychotic medication) it is not registered to give a child in this country under the age of 15.

I didnt want my baby on medication but i had no choice but to go down that route because thru the little 6 years of his life, he was left to rot and he regressed so rapidly in the last 2 yrs that this is the state he is now in.

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funkymamu



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PostSubject: Re: What age did your child/yourself get diagnosed?   26/4/2007, 5:10 pm

S was 7, but funnily enough school picked up little problems since he started in Reception!
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Bambi
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PostSubject: Re: What age did your child/yourself get diagnosed?   27/4/2007, 6:38 am

Wow u were lucky then to have a school on the ball, Ts probs were picked up aged 3 (at nursery school) but not recognised or helped with until now aged nearly 7.

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funkymamu



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PostSubject: Re: What age did your child/yourself get diagnosed?   28/4/2007, 6:00 pm

The school recognised there were problems but didn't associate it with PDA, it was the stand-in head that pushed for S to get help but we are hitting brick wall where PDA is concerned and since the actual head came back. It is also fair to say that this head is actually retiring at the end of term. I dread to think what will happen with a new head or even the stand-in. I hope they don't send him any further back.
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Kellie B.

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PostSubject: At what age was your child diagnosed   1/5/2007, 1:23 pm

At 3 years old Jack was diagnosed with PDDNOS.At 6 the diagnosis was changed to Aspergers, and now, at 18, the Federal Gov't says he's no longer disabled, and will no longer be receiving SSI, or, Supplemental Security Income. I am very happy that the US Gov"t says he is not handicapped, but the extra money was helpful, and also the Medicaid, which he will no longer receive. But I must thank Dr. Mary Megson, a specialist who has treated him for no charge for about 4 years.
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Donna K

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PostSubject: Re: What age did your child/yourself get diagnosed?   25/6/2007, 11:04 am

I have raised questions about A since he was a baby because of the behviour, lack of sleep and screaming allong with many other things.

When people finally started taking notice of me, they started looking at ADHD. I then saw something about autism on TV and questioned my HV about it, she just told me A is too social for that Rolling Eyes Anyway, as time had gone on there is obviously far more to all of this and they have admitted things aren't right and the paed wants a full multi-disciplinary panel assessment to get him doagnosed. So far I have heard nothing from CAMHS and have only seen the paed, and a rubbush EP Rolling Eyes things have been quiet since, so really not sure where we're up to, but as it stands, he is 5 and still has no dx, yet a gp we took him to, also referred him to CAMHS herself as in her opinion he displayed both ADHD and AS while we were there.....
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h

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PostSubject: Re: What age did your child/yourself get diagnosed?   7/7/2007, 8:57 am

At age 3 my son was diagnosed with Specific language disorder.

When he was 9 he got diagnosed with Autistic tendencies.

Now we are going through yet another assessment sometime soon. So maybe he might be diagnosed by the time he is 11 *sigh*
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